Maria’s skin tears open every day but, though her body is fragile, her will is formidable
Eleven-year-old Maria Alejandra is a force to be reckoned with. Strong-willed, articulate and wise beyond her years, she knows what she wants, and sometimes that’s to stay home from school. Because she suffers from epidermolysis bullosa, a rare disease that causes her fragile skin to blister and tear, it’s easy to sympathise when even the most mundane tasks are a painful struggle. It’s also easy to sympathise with her mother who worries that, if Maria doesn’t continue doing everyday things with her peers, she could end up always indoors and isolated.
Deeply honest and compassionate, In Crystal Skin is imbued with the hope and hardship that characterise the daily routines of Maria and her family. This short version is part of a larger feature film that chronicles the lives of Maria and three other people in Colombia’s capital Bogotá who are living with epidermolysis bullosa, a disease for which there is currently no treatment or cure.
Director: Michaela O’Brien
Producer: Melissa Langer
Website: In Crystal Skin